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Building patient registries is essential for advancing rare disease research, but it can be challenging for organizations with limited resources. NORD's IAMRARE® platform helps by providing guidance, technical support, and long-term partnership every step of the way. This week, we’re sharing video stories from patient advocacy leaders we work with. First up, The Coalition to Cure Calpain 3 talks about how we helped launch and grow their registry! Learn more about IAMRARE at iamrare.org. | Nation
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