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Day 1 of Harper’s current stay in the hospital is coming to an end. Harper had her MRI today and there were no changes in ventricle size since her last shunt setting change. Because of that, Harper’s neurosurgeon turned her shunt off. She will stay in the hospital for observation over the next two to three days and then have another MRI. Only at that time, unless she becomes symptomatic for her hydrocephalus, will we know whether she requires another brain surgery. The only thing on Harper’s min
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While in Orlando we were asked why we bring Harper’s walker if she doesn’t use it all the time. What most people don’t realize though is that even while Harper can walk independently she gets tired more quickly than the average person. When fatigued, Harper’s gait becomes sloppy and she is at an increased risk of falling. Harper’s walker allows her to safely continue walking and not rely as often on her wheelchair to navigate the parks. #spinabifida #spinabeautiful #hydrocephalus #chiari #hypoto
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