Adults with SBMA have elevated levels of NfL and GFAP, two biomarkers for nerve damage, in their cerebrospinal fluid, a study ...

As he celebrates SMA Awareness Month, columnist Ari Anderson reflects on his desire to have fun — on day trips as well as ...

Columnist Sherry Toh realizes — through dating apps! — just how much she lives a life of privilege even as she's living with ...

A decision on apitegromab is due by Sept. 22, with Scholar Rock planning to make it available in the U.S. this year, if it is ...

Wow, does that resonate! This disability and all the physical and emotional struggles that come with it is not the life, the ...

Impressed by the accurate portrayal of emergency rooms on "The Pitt," columnist Sherry Toh hopes to see her own rare disease ...

Columnist Helen Baldwin observes SMA Awareness Month by recalling her son's short life with the disease, as well as all she ...

Columnist Connie Chandler explains how letting go of her "ideal" checklist helped her build a diverse and reliable team of ...

A man with SMA and no history of diabetes developed diabetic ketoacidosis, showing how muscle loss may disrupt metabolism.

Learn the seated adaptive deadlift with Coach Damon V and Anna — a rare move for hamstrings, hips, and core strength.

The nerve cell-targeting EXG001-307 seems to have a better safety profile than Zolgensma, showing fewer adverse effects on ...

Ashley Fox reflects on visibility and SMA, encouraging others to ask questions as a way to educate others about SMA.